To guide the RARE Registry, the Melanoma Research Alliance created an Oversight Committee comprised of patients and caregivers, as well as a multi-disciplinary group of medical advisors including dermatologists, pathologists, oncologists, scientists, and surgeons. The medical advisors’ research interests span bench research, epidemiology, quality of life research, translational research and clinical trial development.
Co-Principal Investigators
Scientific & Patient Advisors
Boris Bastian, MD—University of California San Francisco
Trena Brown—Patient Advocate
Elizabeth Buchbinder, MD—Dana-Farber Cancer Institute
Chris Carr—Patient Advocate
Richard Carvajal, MD—Columbia University-New York Presbyterian Hospital
Judith Colin—Patient Advocate
Julie Dewey—Patient Advocate
Rachel Fischer, PhD—Melanoma Research Alliance
Marc Hurlbert, PhD—Melanoma Research Alliance
Patricia Janiak—Patient Advocate
Amy Jardon—Patient Advocate
Jason Luke, MD—University of Pittsburgh Medical Center
David Marx—Patient Advocate
Sapna Patel, MD—The University of Texas MD Anderson Cancer Center
Yevgeniy ‘Eugene’ Semenov, MD, MS—Massachusetts General Hospital
Alex Shoushtari, MD—Memorial Sloan Kettering Cancer Center
Jonathan Swingle—Patient Advocate
Alfonso Waller, MD—Patient Advocate
Eileen Walther—Patient Advocate
J.B. Ward—Patient Advocate
Janet Yannelli—Patient Advocate
Iwei Yeh, MD, PhD—University of California San Francisco