What is the RARE Melanoma Registry?

The RARE Registry is a free, web-based tool for patients with acral, mucosal, and non-acral cutaneous melanoma. By providing detailed information about yourself and your melanoma journey, you are providing researchers with critical information needed to drive research forward about these rare melanoma subtypes. 

The RARE Registry gives you the opportunity to be part of research needed to inform critical questions about risk factors, genetics, epidemiology, diagnosis pathways, treatment effectiveness, adverse events, natural history of disease, clinical trial awareness, and quality of life for patients with acral and mucosal melanoma.