What are the benefits to me, specifically, if I decide to join the RARE Melanoma Registry?

As a participant in the RARE Registry, you receive many indirect benefits, including:  

• Membership into a community of patients, survivors, and caregivers who have been impacted by rare melanoma subtypes. 
• Collaborate with researchers who are focused on and leading progress in rare melanoma research. 
• Access to written and video research updates, virtual meet & greets, and other in-person and virtual events created specifically for RARE Registry participants. 
• Insight into where you fit – based on prior treatments, age at diagnosis, location, and more – compared to other RARE Registry participants. 
• Alerts about potentially relevant clinical trials based on your survey responses.  
• Increased understanding of your disease factors in relation to those of the rare melanoma population in general through use of “Insights” provided by RARE. 
• Satisfaction in knowing that you are helping to advance research into rare melanoma subtypes that may one day benefit you or future patients.